My Story | Part Four | Diagnoses
I did it I had the surgery and I am officially two weeks post-op today. I met with my surgeon yesterday and was able to get all of the details about what he found during my laparscopic surgery.
Before diving into these details, I would like to explain a few things about Endometriosis first.
There are four stages of this disease similar to most cancer diagnoses, though Endometriosis is not cancer, but similar to some cancers it does not yet have a cure. Something a bit unique about Endometriosis is that the stage someone is diagnosed with does not always match their symptoms or pain levels. So, what does this mean? This means that someone diagnosed with stage 1 could have more pain and more symptoms than someone who is diagnosed with stage 4, just for an example. With that being said when an Endometrisos specialist meets with a potenital endo patient while it helps them to hear the patients symptoms, they still never really know just what the disease will look like for that woman until a laparscopic surgery is done.
Once a woman is diagnosed the stage of their disease can change over time. You see this disease does not go away, even if all disease is excised (removed) it can grow back. So it’s important for us endo patients to stay vigilant when it comes to keeping up with our health over time.
As for symptoms (I will do a seperate post on this later) someone with only extreme fatigue for example could have endo, and someone with a whole slew of pelvic pain could end up with a non-diagnoses for endo. That does not mean their pain is not real, it means that something else is going on. Maybe they have adhesions, and lesions that are present but are not endomatriosis tissue or maybe they have a different disease.
Endometriosis does not look or feel the same for everyone, each case is unique.
Now, onto my diagnoses.
On October 10th, 2018 I was officially diagnosed with Stage 3 Endometriosis and here is what that looks like for me.
** I started to write in detail about all of the specific disease that was found and removed and then it started to feel way too personal and way too invasive. So I am going to instead provide an overview of the disease that was found.
Deep Infilitrative Disease or DIE on both the left & right side of my pelvic area
Lesions and Adhesions in several locations
Disease on the inside of my bladder
Endometrioma a.k.a chocolate cyst on my left ovary, this burst in the middle of surgery
Multicystic + disease on left ovary
Left ovary removed
Disease in and around my low pelvic area, uterus, and the peritoneum, and cul de sac.
** Disease= endometriosis tissue